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| Date Entered at Shared Experience: 05/10/2001 |
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THROAT |
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LEIOMYOSARCOMA |
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DOES NOT HELP - CUTTING IT OUT WAS ALL THAT WAS EVER TOLD TO ME |
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SURGERY ONLY- GET A CT SCAN DONE EVERY THREE MONTHS FOR TWO YEARS, EVERY 6 MOST FOR SIX YEARS, AND THAN EVERY YEAR AFTER THAT.
THERE IS A 60% CHANCE OF THIS CANCER COMING BACK IN SOME PART OF MY BODY (IT IS A SOFT TISSUE CANCER). CAN YOU IMAGINE HOW SCARED
I AM EVERY TIME I GO FOR A SCAN. |
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I NOW HAVE FIBROMYALGA - NO ONE TOLD ME IT WOULD HURT LIKE THIS. FEELS LIKE ARTHRITIS IN EVERY PART OF MY BODY. I GAIN WEIGHT, AND CAN'T SEEM
TO GET IT UNDER CONTROL. THE TUMOR WAS WRAPPED AROUND MY ESOPHAGUS, PUSHING MY LUNGS AND EVERYTHING ELSE UP AND BACK MAKING IT DIFFICULT/
IF NOT IMPOSSIBLE TO BREATHE OR TALK. I STILL HAVE TROUBLE BREATHING, AS THERE IS SCAR TISSUE WHERE THEY HAD TO CUT IT OUT. I HAVE
A SCAR HALF WAY AROUND MY BODY. THIS ILLNESS DID MAKE ME APPRECIATE BEING ALIVE AND LEARNING TO LIVE EVERYDAY TO ITS FULLEST. |
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THE CANCER I HAD IS A RARE ONE. I WAS TOLD THAN ONLY 1000 PEOPLE IN ABOUT 10 MILLION CONTRACT THIS TYPE - THAT IS WHY DOCTORS HAVE
BEEN UNABLE TO FIND CURES OR REAL TREATMENTS. A LOT OF PEOPLE HAVE DIED FROM THIS CANCER BECAUSE THERE IS NOT AN ACTIVE EFFORT IN
TRYING TO FIND A CURE. I USED TO BE PART OF A WEB SITE THAT DEALT WITH NOTHING BUT LEIO, HOWEVER I BECAME SO DEPRESSED I HAD TO GET OFF.
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ONE OF THE MOST IMPORTANT THINGS I HAVE LEARNED THROUGH ALL OF THIS, IS TO APPRECIATE WHAT I HAVE. MAKE THE MOST OF LIFE, MAKE FRIENDS
THAT ARE TRUE. DON'T BE ASHAMED TO ASK FOR HELP!! |
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