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| Date Entered at Shared Experience: 03/01/1999 |
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SARCOMA SKELETAL |
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diagnosis of child is osteogenic sarcoma of the left disstal femur with 2 pea sided metastesis in his right lung. |
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doxyrubricin, high dose mtx,cisplatin, and ifosfamide. Child hd difficulty early on with much nausea and vomiting, lost 35 lbs., found that keeping small amounts of food in system at all times helped greatly. He also took oral zofran, oral kyyl, adivan, and benedryl. He also had anaphylactic reactions, rashes, dec BP, etc., according to his oncologists, a nver before seen side effect. To counteract this, he was given pregnisone and benedryl before each iv treatment.
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Child spent 300 days/ 365 days in the hospital for chemotherapy and recovery from chemotherapy. At one point it was taking him 6 wks. to recover from chemotherapy that should have taken 2 wks. to recover from. He was constantly going in to hte hospital on an emergency basis with very low WBC counts, platelet counts, and hematocrit. He was consequently given blood products and antibiotics. He would be hospitallized for recovery between 1 wk to 10 days. Finally, his oncologists put him on GSCF. He had no further hospitalizations for neutopeniaand/or fever of unknown origin. My son also had some psychiatric complications with his chemotherapy. He also has bipolar disorder and had a very hard time tolerating time in the hospital, away from home, school, friends, and his Dad. His Dad had to stay in our home town to keep income coming in. I lived with my son at the Ronald Mcdonald house closest to his hopital. Psychiatric help was very hard to come by. Actual social services were also hard to come by. Ears to listen were much easier to come by. Mom, Dad, and Child were under an incredible amount of stress for 14 mos of his treatment. We are all now living in the same house and the same town and trying to rebuild our lives. A task for which very limited help is available. Take any and all help offered from friends, family, neighbors, nurses, doctors, sdocial workers etc. |
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